When I initially wrote this series, I named it ‘Empowered Patients’. However, I quickly realised that the title wasn’t adequate or descriptive enough for the people I wanted to feature. I think you will agree that these women are nothing short of superheroes. That couldn’t be more true about today’s interviewee who isn’t just her… Continue Reading
Author Archives: admin
CF Superhero – Ashley Ballou-Bonnema
As a 29-year-old musician, teacher, writer, and founder of Breathe Bravely, Ashley Ballou-Bonnema strives to get the most out of a life lived with cystic fibrosis. Originally, Ashley found her voice in a personal blog called, “Breathe Bravely” – a blog reflecting Ashley’s beautiful journey with CF. But through the voice and support of many, Breathe Bravely… Continue Reading
The Crushing Question
A close friend reminded me recently about the time I ripped into him on social media. Being two years ago I had actually forgotten about the incident. He clearly hadn’t. Not one to enjoy confrontation of any kind, this little ‘episode’ was not really my style. Facebook is certainly not the place to be… Continue Reading
CF Superhero – Somer Love
Somer Love’s passion for life leaps out from behind the computer screen. Seeing her posts pop up in my feed is always an instant mood lifter! Somer has a way with words that can express the reality of CF but remain upbeat and inspiring. Her desire to spread love and light in the world lead… Continue Reading
Safe Travels: Twelve Tips to Avoid a Visit to “Club Med(ical)” on Your Next Holiday!
If you have followed me for a while you will know how much I love travelling. Travelling is something that has given me experience and perspective that remain some of my greatest motivators in my health journey. It is the ultimate freedom. In my teens I was blessed to have a doctor that recognised that… Continue Reading
Orkambi – A Love Story (Part Four)
I believe my success with Orkambi hasn’t just been about the changes it has brought to my physical self but equally about wholeheartedly embracing them and falling in love with the life I have the opportunity to create because of it. About redefining myself as a person and seeing beyond the… Continue Reading
Orkambi – A Love Story (Part Three)
The study conditions were strict and my physicians had rightly put the fear of god in me if I was to even entertain the idea of breaking them or do so accidentally. It was with due reason, sharing my experience could jeopardise the trial integrity, something that could have serious consequences for not… Continue Reading
Orkambi – A Love Story (Part Two)
As the number of days to our wedding declined, so did my health. I became incredibly fragile – physically and emotionally. Most of the final planning for our big day was done from an uninspiring hospital room and my tank started to run on empty – I was loosing the ground we had… Continue Reading
Orkambi – A Love Story (Part One).
The origin of the name Jessica is Hebrew, meaning gods grace. When I was younger I used to pay my parents out that they also chose Grace as my second name. In reality they didn’t even realise this at the time. I wouldn’t define myself as religious but I have always… Continue Reading
A Healthy Year
5 tips for organising your (complicated) health needs in 2016! If you are anything like me you are still having to cross out and rewrite the date every time you fill out a form – a sort of subconscious protest that somehow we managed to have nearly ticked off the first month of… Continue Reading
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